Together, We Will Win This Fight
Articles,  Blog

Together, We Will Win This Fight

– My name is Brian
Wallach; I am 38 years old. At the age of 37 I was diagnosed with ALS. I know you don’t often
hear from people with ALS in hearings like this. You don’t, because we’re
diagnosed and we die. – You were just over five minutes. – Being diagnosed with ALS
today is a death sentence. There is no cure; I will not
see my daughters grow up. Not because ALS can’t be cured, but because we have under funded the fight against ALS year
after year, after year. After I was diagnosed, every doctor we saw said the same thing. I’m sorry, but we can’t help you. Initially we didn’t know what to do. But then we realized that
if the system won’t help us, we have to remake the system. – One thing that’s so
terrifying about the healthcare system today is that the power really doesn’t sit with the patients. The idea that we could flip the script, it’s really powerful for
everyone who is living everyday with a whole set of health issues that are not being addressed. – If we cure ALS, we have
the potential to cure Parkinson’s, Alzheimer’s, MS, and a litany of other diseases as they’re actually all connected. Most people don’t know that. In fact, when I was
diagnosed I had no idea. – What is so special
about Brian and Sandra is that they realize you have to fight. – What we’re doing here
is not that different from a political campaign. – Once we realized that there were skills and friends we had that
could have an impact and accelerate this work,
there was no question about do we sit on the
sidelines or do we act. – Everyone says you
can’t solve this thing. Can we figure out a way
to prove them wrong? Nothing good is easy. – This is not a movie. Our time is short. – I don’t think there’s any
test of the human spirit more telling than someone telling you you don’t have a long time to live and responding in this way. Not saying, this is something
I’m going to get done before I die, but we’re
gonna get this done and I’m gonna live. We’re gonna get this done for everyone. ♪ So give me tomorrow and
we can laugh at yesterday ♪ ♪ But I won’t pretend there
ain’t nothing wrong today ♪ ♪ And I don’t wanna close my eyes ♪ ♪ On the progress that we made ♪ ♪ But for every inch, there
is a mile of mistakes ♪ ♪ So go on, go on ♪ ♪ Go on, oh honey ♪ ♪ Go on my baby, go on, ♪ ♪ all the way ♪

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