Number 48
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Number 48

♪ Waking up to a new sunrise. Looking back from the other side. I can see now with open eyes ♪ ♪ Darkest water and deepest pain. I wouldn’t trade it for anything. ♪ ♪ ’cause my brokenness brought me to you, and these wounds are a story you’ll use ♪ ♪ So I’m thankful for the scars ♪ ♪ ’cause without them I wouldn’t know your heart ♪ ♪ and I know they’ll always tell of who you are ♪ ♪ So forever I am thankful for the scars ♪ ♪ Now I’m standing in confidence ♪ ♪ with the strength of your faithfulness ♪ ♪ and I’m not who I was before ♪ ♪ No, I don’t have to fear anymore ♪ ♪ So I’m thankful for the scars ♪ ♪ ’cause without them I wouldn’t know your heart ♪ ♪ and I know they’ll always tell of who you are ♪ ♪ So forever I am thankful for the scars ♪ ♪ I can see, I can see ♪ ♪ How you delivered me ♪ ♪ In your hands, In your feet ♪ ♪ I found my victory ♪ ♪ I can see. I can see. ♪ ♪ How you delivered me ♪ ♪ In your hands, In your feet ♪ ♪ I found my victory ♪ ♪ I’m thankful for your scars ♪ ♪ ’cause without them I wouldn’t know Your heart ♪ ♪ and with my life I’ll tell of who you are ♪ ♪ So forever I am thankful ♪ ♪ I am thankful for the scars ♪ ♪ ’cause without them I wouldn’t know your heart ♪ ♪ And I know they’ll always tell of who you are ♪ ♪ So forever I am thankful for the scars ♪ ♪ So forever I am thankful for the scars ♪ Sarah we just heard some lyrics about
scars in a person’s life, and I know you can relate to that. Can you tell me a
little bit about that and who Sarah is? I certainly can relate You know, growing up with two different disabilities isn’t always easy. I have a long and extensive history at Cincinnatti Children’s Hospital and it’s been a rocky road. That’s what I understand. You’ve had going on 48 surgeries at Cincinnati Children’s Hospital. I have. You’ve mentioned in the past its’s almost like a second home Yes. It feels like a second home and the people there almost feel like friends and family I’ve been going there since day one and they have been incredible for me and they have really saved my life. That’s amazing You shared with me a little bit about the two physicians who’s really made a difference in your life and I’m sure
there’s countless people from from Cincinnati Children’s Hospital who
affected your life in a positive way. I can’t possibly name them all but there are two in particular that have been there for me since day one and they are incredible people One is Dr. Ann Kummer who is a former speech pathologist and Dr. Ron Hathaway who is a former orthodontist. and both of them took on my case. I know a little bit about your disability history but could you share tell me a little bit more about
the two main types of disabilities you have as far as the stroke and Turner
Syndrome? Yeah, so before birth, I was born with a prenatal stroke and Turner Syndrome. As a result, I have right side weakness and significant speech related issues, as you can already tell. I have spent countless hours within the hospitals and I’ve had 47 surgeries and because of this I’m passionate about the medical field. That kind of inspired me to work with you on this independent study project. I’m here with my current ASL professor Nick Osborn, to ask him about the cultural impact of disability as it relates to the Deaf community. Well, thank you Sarah for the opportunity
to be a part of this project. Growing up in a family whose parents are Deaf I’ve
been exposed to this my entire life and I typically see there are two approaches
that we tend to see majority of application coming primarily from a lens
of a medical perspective of the child is deaf we’ve got to fix them and that
approach oftentimes what those families typically tend to focus on oralism and
reading lips and how do we pick these things up to allow you to function in a
“hearing world.” Unfortunately though it deprives that child of language, deprives
them of identity, and oftentimes they grow up with a lot of gaps until we’re able
to close those gaps with the language deprivation. They said that over 95%
of deaf children are born to hearing families, and of those families less than 10% embrace sign language as their access of communication, so this identity issue is
truly a complex one, especially in our culture when they talk about a medical
perspective versus a cultural perspective and how do we bridge the gap of bringing those two together, I think is the key of seeing the individual
versus the disability, and I think in our hearing
able world we tend to identify disability more than we do the
individual. We see the person in the wheelchair not getting to know that that
is Scott. We see the person with with the service animal, and we want to pet the
dog, and not find out that that’s Kelly, and find out her story and I think
oftentimes we overlook the person and we’re so focused on a diagnosis. That can be very dangerous in our approaches. How does ODS advocate for students? That’s a great question. We’ve had a long history of advocating for students with disabilities, well
before it was required by law. We’re one of the few campuses that you can walk onto and kind of no matter what corner you turn you’re gonna see
somebody with a disability you know using wheelchair using a walker maybe that’s using a white cane because they have a visual related disability
we definitely pride ourselves on being very inclusive in that area so you know
I’d say in terms of how we advocate for our students you know you can think of
the more traditional kind of advocacy of meeting with the student after they get
out of high school or is they’re transitioning into Wright State coming
up with an accommodation plan and then us reaching out to the faculty and
sharing what the accommodations are whether that’s you know a note-taker an
interpreter or extended test time things like that. There’s a lot of things that
we do as a staff and we have a staff of nine people that we do in the background
to support students and that goes from everything to you know kind of
conversations we’re having to educate faculty on maybe how an accommodation
works without the student just to get them better prepared to all the way to
when they’re looking at job placement and career you know working with an
employer working with a student on how to interview you know whether or not
they should disclose when they should disclose and the interview process
things like that and then of course even just during their time here at Wright
State you know working with some of the student activity groups making sure that they are being more inclusive in Universal Design and their
approaches to our purchasing department when it comes to you know vendors and
purchasing software or even furniture you know little things that think most
people don’t think about like if we’re going to equip a classroom we’ve been
really good about making sure that we put some chairs with wheels and some
chairs without wheels because let’s face it not everybody benefits from having a
wheeled chair when it comes to balance and mobility so it’s you know it’s there’s a
many different aspects that we are involved in here on campus. I would say
we’re one of the few departments on campus that touches every part of Wright
State and its operation and it’s kind of the life of the University and we take a
lot of pride in that. You know, when I was younger I never really knew that I would go to college even though it was something I desperately wanted. Being here surrounded by fellow fellow college students with disabilities is a huge blessing So, well before you were born there was a movement in the 60s. A civil rights movement and the feminist movement which really inspired the
movement for people with disabilities and then along with that there have been
different laws and policies put in place to help people with disabilities
especially in the vocational arena so we’ve we’ve been doing well. We
still need to advocate as I’m sure you’re aware of as a person with
disability. Advocacy doesn’t stop and it’s important for us to to share our
stories and to continue to advocate for people with disabilities Yeah, and we’ve come so far, but there’s a long way to go. And you know just to highlight that in
the 60s I had a neighbor who had a child who had a disability, a severe disability
and children like that were put away and so you know watching them include
him and everything and having my family include him was really amazing
experience for me because we’ve come a long way from locking somebody up
to treating them just as every other person should be treated so that that
really inspired me and I’ve been working in the field of disabilities (excuse me)
in one way or another you know either hands-on or teaching or advocating or
mentoring and now my work has been in research and I can advocate through my
research. So, through your work how were you able to advocate for those with disabilities? do that one way is through publishing my
own research which has implications for policy. That’s one way. Another way is to
inform my students about research and have them do research projects and then
the third way is I’m an editor for a journal and the journal is applied
rehabilitation counseling, so I review and publish quarterly on all topics and
all types of people with disabilities and yeah it is it’s fun and it’s nice to
work with others across the country Yeah, I bet we have special issues we just had one
on vocational emerging issues and people with disabilities so I think the next
next special issue should be students with disabilities. That would be so cool. Well, I’m so grateful for all that you do and I know you’re doing amazing things. Well you’re the amazing one Sarah and thank you for coming into my life and continue to
share your story because your story is all about advocacy. Thank you. You’re welcome. well, tell me, you have such a long story in such a short life so far so you know kind of in summary, how would you
summarize the importance of advocacy? You know for people who have members of
their family with disabilities and people who like you have a disability
what message would you give to people as far as advocacy for people with
disabilities Yeah, you know throughout history advocacy hasn’t been prevalent and especially for the disabled community. I’ve seen this firsthand in both the medical and educational realms. and I know all too well the impact advocacy has on the life of someone living with a disability After all, anything is possible given a little effort. Yeah, it doesn’t have to be a huge
dramatic sort of, I’m donating my whole life to advocacy but even small things
really make a difference. You know, life isn’t about where you start but about where you finish.

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